OptiquesJeff... Difficult health news..

[ViolinCyndee]

I thought I should let you all know what has been going on with my husband (OptiquesJeff here on PE), since I have been posting updates on fb, but not everyone here is on fb. I can't add too many more friends, since I am almost at my 5000 limit, but I can post updates here on this thread.

Anyway.. I am very sad to report that Jeff is now facing pancreatic cancer. It's in his pancreas, some lymph nodes, duodinum and has metastisized into his liver. It is not operable, as is, so his oncologist is having him start chemo tomorrow to shrink the tumors, making them operable. We will know in 6 weeks if the chemo is working the way we need it to.

Things have been very tough here, and are getting harder every day.

[Scott Bails]

Oh, wow, Cyndee. So very sorry to hear this. I sincerely hope for the best possible outcome for you and Jeff, and I wish you and your family peace.

You guys will be in my prayers.

Scott

[ViolinCyndee]

Oh, wow, Cyndee. So very sorry to hear this. I sincerely hope for the best possible outcome for you and Jeff, and I wish you and your family peace.

You guys will be in my prayers.

Scott

Thank you Scott...

[Amy]

Cyndee, I think of Jeff and you often and will continue to do so, especially tomorrow as he begins treatment. Wishing for things to go the very best that they can for you both.

Hugs, hope,

Amy

[scags]

We're all wishing you the best, Cyndee.

[mozo-pg]

Oh my God, I cannot image this happening to a loved one. I'm actually not very religious at all but I'll still pull out a prayer for Jeff. Sincerely very sorry to hear this news.

[Christopher Henry]

You guys will be in my thoughts.

[zombywoof]

Sad news. You two were really wonderful to me at NF and helped to make me feel welcome. Please send my best to Jeff, I wish him a full recovery.

[ForeverAutumn]

Cyndee, I'm so very sorry to hear this news. I hope for successful treatment and a positive outcome. I wish there was more that I could do for you both.

[progeezer]

:O:( Cyndee - all the best to Jeff and to you from Kay & I. Will be thinking about him as he starts his therapy, hoping for the best possible outcome.

[arabicadabra]

He and you are definitely in my prayers Cyndee.

[ViolinCyndee]

Thank you so much everyone... Your support means so much to us..

[Plasmatopia]

So sorry to hear, Cyndee. Positive vibes being sent to you and Jeff.

[ViolinCyndee]

Thanks everyone.. :(

[Jerjo]

Been following this on FB and will continue to keep you two in our thoughts and prayers

[Dan Roth]

Cyndee - sorry to hear of this news. Will definitely keep you two in my thoughts and prayers.

[Trane]

Cyndee,

thanks for posting here (yeah, I'm a fb hater)...

From your OP, it doesn't look good...

Pancreas problems are definitely tough...

Though I've got a buddy that has pancreatis and was diagnosed max 5 painful years... but that wazs 7 years ago, and he doesn't seem to be in pain when I see him around...

Best of luck and courage for both of you...

[spacefreak]

I wish you all the best!

[Progmatic]

Sorry to hear it...I wish you all the best....

[Rarebird]

I'm on Facebook, but I hardly use it. There are things I rather like not to know about Facebook friends. I've joined it to keep in touch with some people and to learn about the health of some of them, but I'm not sure I want to know everything they think.

Wishing Jeff all the best and you as well.

[OptiquesJeff]

thank you all for your support.

[OptiquesJeff]

thank you all for your support.

[Scott Bails]

Hey Jeff. Hang in there, buddy. Obviously, we're all pullin' for ya.

[NeonKnight]

All the best thoughts and prayers headed your way. For both of you.

[Hunnibee]

Good luck today with the chemo. You both are in my thoughts and in my heart. *hugs*

[laurainspace]

supporting you both with positive vibes and healing thoughts.

[MudShark22]

My thoughts and prayers with you and your family during these challenging and difficult days.

- Thomas

[Sunlight Caller]

Oh simply awful to hear you are going through such tough times, my heart goes out to you both, and I hope it all improves very soon.

[spellbound]

Our thoughts and prayers and very best wishes go out to you, Jeff and Cyndee.

[ViolinCyndee]

Thank you everyone.. Your support really means alot to us..

[Don Arnold]

More thoughts and prayers your way Cyndee and Jeff.

[Blah_Blah_Woof_Woof]

Everything I've ever witnessed of you two, on this board and at NEARFest, has always been about love and enthusiasm for the music. You are two wonderful people who deserve only the best in life.

I am wishing for your health and happiness.

[ViolinCyndee]

Everything I've ever witnessed of you two, on this board and at NEARFest, has always been about love and enthusiasm for the music. You are two wonderful people who deserve only the best in life.

I am wishing for your health and happiness.

Awww.. this is so nice.. <3


Thanks to everyone for all of your support..

[Lou]

Will certainly add you and Jeff to the prayers. Best of luck to you both.

[Digital_Man]

Sad news. I hope he gets better soon.

[walt]

Sorry to hear of your health problems.I hope things go well for you.Good luck.

[Modry Effekt]

Sad news.Get well bro.

[kid_runningfox]

Having similar issues with my Dad right now - good thoughts to you both.

[100423]

Positive vibes to aid in the healing process sent your way!

[ViolinCyndee]

Having similar issues with my Dad right now - good thoughts to you both.

Best of luck to your Dad, as well... <3

[OptiquesJeff]

thank you all

[Polypet]

we send our prayers to you both. i hope the procedures turn the tide and allow for a positive outcome to all of this.

stay strong, you guys.

Kim

[ViolinCyndee]

Thanks everyone.. I will post updates as we get info..

[Rune Blackwings]

Sad about Jeff. Good luck...

[wilcox660]

Much love to you both. Jeff & I still have some concerts to hit together! This must occur!

[ViolinCyndee]

Thanks everyone..

[Seven8]

I don't log on PEv3.0 very much any more, and this forum even less, but I do remember seeing a lot of posts from you both so I'm very sorry to hear. Sending positive energy your way. Getting old sucks, but try to smile and laugh when you can - I don't believe much about religion but I do believe that a strong, positive attitude can help to heal. Beat this thing! Peace.

[wideopenears]

Prayers for you both...

[Rune Blackwings]

Jeff and Cyndee are the epitome of soul mates.

[Chuck AzEee!]

Oh my. Cyndee here is to praying for the best for your husband's swift recovery.

[ViolinCyndee]

Thank you everyone... Your support means so much to us.

[OptiquesJeff]

Thank you everyone... Your support means so much to us.

Likewise to me as well.

[ViolinCyndee]

Good luck today with the chemo. You both are in my thoughts and in my heart. *hugs*

Thank you Mel... Chemo wasn't as bad this time as it was last time..

[Hunnibee]

Chemo wasn't as bad this time as it was last time..

Glad to hear that!

[Magic Mountain]

I wish you and Jeff the best luck as you begin chemo. It is important to try and remain positive, even though at times it may seem impossible. My heart goes out to the both of you.

[ViolinCyndee]

I wish you and Jeff the best luck as you begin chemo. It is important to try and remain positive, even though at times it may seem impossible. My heart goes out to the both of you.

Thanks MM.. yes, this is the most difficult part--especially considering the loss of our friend, Ken (Arkangel3), too.. :( Trying to focus on the mini-goal of getting the test results back in about a month..

[Casey]

If good thoughts have the power to heal....

Many, many good thoughts are going your way.

My very best wishes for strength & peace.

Kevin/Casey

[Sean]

Jeff, I want you to know my thoughts and prayers are with you and Cyn during this difficult time. Stay strong.

[ViolinCyndee]

Thanks Sean, and everyone....

[jazzcat]

sending warm thoughts and prayers for you jeff and cyn too

[JKL2000]

Cyndee & Jeff - I just saw this thread now. I'm really sorry to hear about this. I hope things go well with the chemo. Thanks for letting us know and keeping us informed.

Jed

[ViolinCyndee]

Thanks everyone... Chemo wasn't as bad this week as the first time a few weeks ago. He has had a decent appetite, and has spent some time outside. Of course, he is very tired.. Hoping to try to keep him positive, even with the loss of his cancer 'brother', Ken... (we will be going to the viewing tomorrow). :(

[Scott Bails]

Glad to hear that you guys had an "easier" week. Here's hoping each week gets progressively (:)) easier.

[ViolinCyndee]

We hope so too, Scott..

[Casey]

Stay positive!

[ViolinCyndee]

Glad to hear that you guys had an "easier" week. Here's hoping each week gets progressively (:)) easier.

Yes, but that will probably not be the case, since it is cumulative in your body. :( We are just happy that this time was not so bad. His hair is definitely coming out now, and I just tried buzzing him out on the deck with his beard trimmer, but it didn't really cut well enough. Need to get a proper razor for buzzing! (or just take him to get it done quickly--prob cheaper, too)...

[MoodsWings]

I'm so sorry to hear this. Sending you and Jeff the most positive thoughts.

[Jefferson James]

Just visited this page for the first time, and saw this. Been aware and in touch via Facebook and happy to see some positive news! Love to you, Cyndee and of course Jeff.

[progeezer]

What's the latest for those of us who don't do FB, CynJeff?

[ViolinCyndee]

What's the latest for those of us who don't do FB, CynJeff?

Hey Geezer.....thanks for asking. Things are still pretty tough here. We still have to wait a bit longer before the updated CT/PET and MRI scans are taken. They will be compared to the original scans to see if the chemo is working to shrink the tumors, making them operable. We should know in a few weeks.. Very nerve-wracking to not know. We are both very anxious, and Jeff was very depressed today. On the other hand, his appetite has been pretty decent, so that is good.. He gained a few pounds at his last weigh-in, though is still very thin. He will have his 3rd chemo treatment on Monday, then an appointment with the oncologist again on Thursday. Hopefully, we will be able to schedule the new scans soon..

[VickiLynn]

I don't know you, Cyndee (I'm new to PE), so I hesitated to write a comment yesterday when I noticed this thread, but since it popped up again this morning I just wanted to let you know I'm sending out positive energy and thoughts to you and Jeff. My mother just got her two-year "cancer free" diagnosis, and I just wanted to let you know that I can empathize a bit with your experience. I was my mom's support person during chemo and operation -- she had stage III bladder cancer -- and while the chemo was nasty stuff to deal with, it certainly did its job and shrunk her tumor down. She had her bladder removed, along with everything else adjacent, and she had "clean margins," which I attribute to the chemo. Hang in there and keep visualizing those tumors shrinking (((hug)))

[Scott Bails]

We are both very anxious, and Jeff was very depressed today.

I can't even imagine.

However, if it helps at all, know that many of us are praying hard, sending the most positive vibes, and have you both in intense virtual hugs.

We've got your back. ;)

[Dan Roth]

We are both very anxious, and Jeff was very depressed today.

Positive thoughts and prayers coming at you guys from myself and Amanda.

[ViolinCyndee]

I don't know you, Cyndee (I'm new to PE), so I hesitated to write a comment yesterday when I noticed this thread, but since it popped up again this morning I just wanted to let you know I'm sending out positive energy and thoughts to you and Jeff. My mother just got her two-year "cancer free" diagnosis, and I just wanted to let you know that I can empathize a bit with your experience. I was my mom's support person during chemo and operation -- she had stage III bladder cancer -- and while the chemo was nasty stuff to deal with, it certainly did its job and shrunk her tumor down. She had her bladder removed, along with everything else adjacent, and she had "clean margins," which I attribute to the chemo. Hang in there and keep visualizing those tumors shrinking (((hug)))

I really appreciate this... Nice to see you as a new member here on PE, too, and that's great news about your mom, too..

Huge thanks to everyone who has posted in this thread!

[moecurlythanu]

I just saw this now. Very sad to read this Cyndee, life isn't fair. Here's hoping for a full recovery for Jeff. Cancer can be beaten!

[ViolinCyndee]

I just saw this now. Very sad to read this Cyndee, life isn't fair. Here's hoping for a full recovery for Jeff. Cancer can be beaten!

That's what we're hoping for... We wll know in just a few weeks now...

[Modry Effekt]

Thoughts,sending spirit of love and heal for Jeff and Cyndee.Everything will be good again,and not far away.

Dashiell Hedayat - Long Song For Zelda


http://youtu.be/M1Kqf5gPsdg

[ViolinCyndee]

Thank you all.. All of your positive vibes are really making a difference..

[progeezer]

I'm sorry I'll miss my "Rosfest Walk" with you this year, Jeff!:D

Next year we'll make up for it.

[ViolinCyndee]

I'm sorry I'll miss my "Rosfest Walk" with you this year, Jeff!:D

Next year we'll make up for it.

Yes, let's plan on that happening..

[ViolinCyndee]

UPDATE:

OK today was another adventure with Jeff's health. He seemed a little out of it yesterday and slept most of the day. He had garbled speech, but I thought it was from being tired from the meds. Then today, we got ready to go to chemo, but his symptoms had worsened. His speech was highly slurred, and he was drooling from his lip, which was slack on one side. These symptoms increased for several hours, and he was drooling profusely at the chemo infusion center. It appeared that he had a stroke, so he was sent to the ER (no chemo today).

So, next was a head CT, and thorough exam, which came back negative for stroke. Since that was ruled out, they have ordered an MRI to see if there are any red flags (cancer, or anything else) in his brain. He was admitted and is being observed overnight. I went back home to get some things, and am staying overnight with him here at the hospital.

Now we wait until the MRI machine is open and then will see if he is clear. Hopefully, he will be able to get chemo tomorrow--especially since we are basically one block from the infusion center. We also hope he will be able to stay on schedule with the chemo, too.

So... always something! I will get back to all of you as soon as we have the MRI results (probably tomorrow).

[Plasmatopia]

Wow, Cyndee, tough day...wishing the best for both of you.

[Scott Bails]

Wow. Thank God it's not stroke. Praying that it's nothing more. Hang in there, guys.

[ViolinCyndee]

Thanks.. still waiting to do the MRI..

[Brian Griffin]

I recently lost a good friend and co-worker to cancer

We had our national sales meeting last week, and they paid tribute with pictures, videos, etc which while I appreciated, really reopened the wound for me although I was really happy they did that

The following day another co-worker confided he's been diagnosed as well - devastating

Both really good people

That being said, people started sharing stories, including a mom who underwent chemo who is now cancer free for over 3 years

Stay posistive, reading back there is obviously a lot of love and good thoughts being sent your way - here's to hoping yours becomes one of the uplifting stories

BG

[ForeverAutumn]

Cyndee, I am so sorry that you and Jeff are going through this. How terrifying it must be for you both. I had lunch on Sunday with a good friend who is going on 15-years of being cancer free. There are lots and lots of happy endings out there. I am sending my strongest and most positive thoughts and vibes in your direction. Love you to both!

[ViolinCyndee]

Thanks everyone.. Yes, scary. Just met the oncologist here at the hospital who works with Jeff's regular oncologist. He said that the head CT showed an abnormality and that the MRI will give us a clearer picture of what is it. Still waiting to get the MRI done...

[Jefferson James]

Hoping for the best MRI news possible, Cyndee -- love to you both.

[ViolinCyndee]

UPDATE: the general vibe of the team of doctors here is that Jeff experienced a mini-stroke. He showed minimal signs--only the slurred speech and drooling. His arms, legs, and cognitive abilities are all intact, and he can produce a smile. He does, however, have trouble only trying to move the one side of his lip, individually. He was started on a blood thinner today and is now getting an ultra-sound of his legs to check for blood clots. We should have the MRI and CT readings within a few hours....

[Scott Bails]

If it's any consolation, Cyndee, my father has had two mini-strokes and he's fine.

Yeah, I know everyone is different (hell, every stroke is different), but it sounds like Jeff's getting good care.

[progeezer]

How are you holding up, Cyn?

"The Waiting" is indeed the hardest part. I know from my own situation in 2009.

[ViolinCyndee]

If it's any consolation, Cyndee, my father has had two mini-strokes and he's fine.

Yeah, I know everyone is different (hell, every stroke is different), but it sounds like Jeff's getting good care.

Yes, everyone is different, but it's encouraging to hear that.. Thank you..

[ViolinCyndee]

How are you holding up, Cyn?

"The Waiting" is indeed the hardest part. I know from my own situation in 2009.

I am just hanging in there.. I feel yucky (need shower/clean clothes) and exhausted (slept in this reclining chair for 2 nights, and not very well). We keep getting more and more obsacles here.. First it was an ulcer, then cancer in duodinum, then pancreatic cancer, then stage 4 pancreatic cancer that has spread to the liver.. and now: stroke! joy.... (not). Hopefully the MRI and CT scans from yesterday don't show us any more 'surprises'... There is an 'abnormlity' on Jeff's frontal lobe, which is probably caused by the stroke (hopefully not cancer). The doc said that the pancreatic cancer CAN spread to the brain, but that it would be highly unlikely. So.. still awaiting the readings of the MRI and CT scans to hopefully rule that out...

[NeonKnight]

Pulling for you guys big time! Keep the faith, stay positive and all the best to you both!

[Duncan Glenday]

Thanks for keeping us posted, Cyndee. We're all pulling for you.

Jeff (and you!) are still in Arhlene's and my prayers and positive thoughts.

[TheNefariousHED]

Peace and positivity!

[ViolinCyndee]

OK.. we got confirmation from one of the doctors here at the hospital that Jeff definitely DID have a stroke, but he does NOT have any cancer in his brain. How surreal it is to be (relatively) happy about having a stroke, but when the alternative could be cancer, it only make sense..

So, he has the one clot in his brain, and one in his lung. The blood thinner shot should be able to resolve this very easily. Jeff will be administering the shots daily, and is about to give himself his first shot while the nurse coaches him.

[Scott Bails]

Good news. :up

[Duncan Glenday]

Huge relief!

thanks again for the updates - we're still pulling for his recovery from the other ussues he's facing.

[VickiLynn]

Still sending out positive thoughts for healing and strength :)

[ViolinCyndee]

Yes we are happy that it was a stroke! How surreal is it to be happy about a stroke? :)

[Magic Mountain]

Glad to hear that there was some good news for a change. Here's to more in the future!

[progeezer]

OK.. we got confirmation from one of the doctors here at the hospital that Jeff definitely DID have a stroke, but he does NOT have any cancer in his brain. How surreal it is to be (relatively) happy about having a stroke, but when the alternative could be cancer, it only make sense..

So, he has the one clot in his brain, and one in his lung. The blood thinner shot should be able to resolve this very easily. Jeff will be administering the shots daily, and is about to give himself his first shot while the nurse coaches him.That's some good news! If they are subcutaneous pre-filled syringes that are self administered in the tummy, been there (more than once), done that (both Heparin & Lovastatin).

Jeff, don't think it's just you if you have some bruising (black & blue-ness) at the injection sites. (no pain though). It isn't:).

[Polypet]

that's most excellent - and yes surreal to be happy about it but...

hopefully, he'll fully recover from the stroke and regain all of his faculties (including lip movement). also, here's to the blood thinner keeping this from happening again.

i can only imagine the anxiety around all of this. we've gone through this with loved ones in the past and i know it's a lot. do try to get as much rest as you can and take solace
where you can find it. the love and supportive energy you're getting from your friends and family may see you through this. i sure hope so.

stay strong, you two. know that you're in our hearts as you go through it. if you need anything, let me know :P

Kim

[mozo-pg]

:up

[ViolinCyndee]

UPDATE: we are at the chemo infusion center, but Jeff's hemoglobin was too low for him to receive chemo today. He is now getting a blood transfusion, and we'll be back on Friday for chemo. He is at his lowest weight ever, so we need to work on getting in more calories at every opportunity.. :(

[progeezer]

:( indeed!

Hang in there, you guys. We're all here hoping & praying (depending on one's theology) for the best.

[Duncan Glenday]

Thanks for the update, Cyndee.

I hope Jeff knows how strongly we're all pulling for him!

[Modry Effekt]

UPDATE: we are at the chemo infusion center, but Jeff's hemoglobin was too low for him to receive chemo today. He is now getting a blood transfusion, and we'll be back on Friday for chemo. He is at his lowest weight ever, so we need to work on getting in more calories at every opportunity.. :(

We love you.If Jeff can't hear this at moment.Tell him he has a new friend.

STEVE HILLAGE - MOTIVATION RADIO - Saucer Surfing


http://youtu.be/YPW-jMTr-B4

[ViolinCyndee]

We love you.If Jeff can't hear this at moment.Tell him he has a new friend.

STEVE HILLAGE - MOTIVATION RADIO - Saucer Surfing


http://youtu.be/YPW-jMTr-B4

Beautiful.. thank you so much..

[JKL2000]

Yes, definitely pulling for you both. Hang in.

[tom unbound]

Jeff !! And Cyndee !! I just spotted this ! (I'm not a facebooker and don't hit all the nooks and crannies here at PE) What a shock ! If there's anything I can do or send - Please let me know !!
I met Jeff once at Nearfest, he came up to me and introduced himself, he recognized my Tom Unbound shirt. That was so cool of him. Love and best wishes to the two of you !!! (insert heart shaped smiley here) (twice)

[ViolinCyndee]

Thanks everyone... Hopefully, his hemoglobin count will be fine for him getting chemo tomorrow (re-scheduled from Tues)

[Seven8]

Being "happy" that it was a stroke reminded me of when I heard Kerry Livgren say he was thankful that he'd had a stroke. Gotta look at it in a positive sense. It sounds like Jeff is in good hands. Hang in there, you two, and stay strong!

[ViolinCyndee]

Being "happy" that it was a stroke reminded me of when I heard Kerry Livgren say he was thankful that he'd had a stroke. Gotta look at it in a positive sense. It sounds like Jeff is in good hands. Hang in there, you two, and stay strong!

Yes, trying to stay strong for him. Sometimes, he looks like he is giving up already, but I have to keep on him about trying... He has only had 3 chemo treatments, so far, so we need to give things more time to kick in..

[ForeverAutumn]

Please don't forget to take care of yourself too Cyndee.

I think about you both every day.

[Modry Effekt]

Please don't forget to take care of yourself too Cyndee.

I think about you both every day.

I do also.I pray for you Cyndee and Jeff.Hang in there.I love you.


Bill Fay - Love Is The Tune



http://youtu.be/CtzasqsUJ7Q

[ViolinCyndee]

Thanks everyone...

[Modry Effekt]

For Cyndee and Jeff.
This is important.When we meet we talk about this.
http://youtu.be/VGZ-WrQU_k0

[Dave G]

hi just saw this thread, so sorry to hear about all this Jeff & Cyndee....
please know my thoughts are with you both
wishing you lots of strength

[ViolinCyndee]

hi just saw this thread, so sorry to hear about all this Jeff & Cyndee....
please know my thoughts are with you both
wishing you lots of strength

Thank you Dave...

We'll take any little bit of good news, which we got on Tues. at the oncologist: Jeff's liver is now functioning at a normal level. This could indicate that the tumors in the liver are shrinking, but cannot be confirmed until his next CT scan within the next 2 weeks.. He also gained a few pounds this week.. Chemo tomorrow..

[Scott Bails]

Incremental good news is still good news!

[Dan Marsh]

Loving thoughts being sent your way to the both of you!

[100423]

Incremental good news is still good news!

Agreed! Looking forward to hearing plenty more!

[Modry Effekt]

Thank you Dave...

We'll take any little bit of good news, which we got on Tues. at the oncologist: Jeff's liver is now functioning at a normal level. This could indicate that the tumors in the liver are shrinking, but cannot be confirmed until his next CT scan within the next 2 weeks.. He also gained a few pounds this week.. Chemo tomorrow..

For Cyndee and jeff.You can do this ! Fight like a lions.


http://youtu.be/P1gufb1qac4

[tom unbound]

Liver working, gaining weight ! Defiantly good news !

https://www.youtube.com/watch?v=1gSDZ_fpaFA

(Rainbow Dome's healing power also recommended !)

[spacefreak]

All the best... Stay strong!

[Progmatic]

Thank you Dave...

We'll take any little bit of good news, which we got on Tues. at the oncologist: Jeff's liver is now functioning at a normal level. This could indicate that the tumors in the liver are shrinking, but cannot be confirmed until his next CT scan within the next 2 weeks.. He also gained a few pounds this week.. Chemo tomorrow..

great news...keep them coming....:up

[ViolinCyndee]

OK the weight he gained last week was only temporary.. Back down to 120 pounds. :( He got 1 unit of blood yesterday, and will have another unit tranfused in on Monday. He will have his first psych appointment since his dianogisis this Monday, too. He really needs this---way too much for him to deal with..

One good thing did happen this week, though: RMI recorded 2 sets for the Gagliarchives in our livingroom on Thurs. It was really great for Jeff, and everyone was so full of love for him, taking pics with him and giving him/us so much support.

[progeezer]

Awesome about the Massacres, Cyn!:)

Keep on keeping on, you guys!

[ViolinCyndee]

Yes, he is so happy about the show! It really did wonders for his spirits. Thanks to Tom Gagliardi for letting us host...

[Polypet]

upbeat spirits can only help, eh?

stay strong you guys...

our hearts are with you,

Kim

[ViolinCyndee]

Thank you Kim... xoxo

[NogbadTheBad]

Truly wonderful of Tom and RMI to pull that off. Rooting for you guys

[Plasmatopia]

Music is a healing force. I can definitely see how having RMI there could lift his spirits!

[IMWeasel]

I know I'm pretty absent from this place these days, but get well soon dude.

[ViolinCyndee]

Thanks to everyone for your support..

[OptiquesJeff]

Beautiful.. thank you so much..

indeed

[OptiquesJeff]

Yes, he is so happy about the show! It really did wonders for his spirits. Thanks to Tom Gagliardi for letting us host...
it was awesome...best day I've had in quite some time.

[Duncan Glenday]

it was awesome...best day I've had in quite some time.

Good to "see you" here, Jeff!

[wilcox660]

http://i108.photobucket.com/albums/n5/wilcox660/jc_zpsd4899b33.jpg (http://s108.photobucket.com/user/wilcox660/media/jc_zpsd4899b33.jpg.html)

A pic I shot back in 2009. Hope it brings a smile to all!

[Magic Mountain]

http://i108.photobucket.com/albums/n5/wilcox660/jc_zpsd4899b33.jpg (http://s108.photobucket.com/user/wilcox660/media/jc_zpsd4899b33.jpg.html)

A pic I shot back in 2009. Hope it brings a smile to all!

Nice picture John! Looks like NF.

Jeff-and-Cindy...I am still wishing all the best for the both of you.

[Fox]

:D Keep on smiling Jeff and Cindy. Charlie and I send are sending healing vibes.

[ViolinCyndee]

UPDATE...

We had another 'fun' adventure this week with Jeff's health, and the scare of my life. On Thursday, Jeff was getting up out of bed to come downstairs, and I heard him moaning up in the landing. I got the phone and when I came back up, he was seizing, eyes wide open, mouth open and blood coming out of his mouth. I thought he was dead and freaked out, screaming. I was able to call 911 and followed the ambulance to the hospital. He has been on fluids since Thursday and received 2 units of blood. His magnesium and potassium were very low, so they have been infusing those, as well.

Hopefully, he will be able to go home tomorrow.. I/we do not need this kind of excitement... :(

[Scott Bails]

Wow, Cyndee. :O

No, you don't need that excitement at all. I know you're worried sick about Jeff, but please make sure to take care of yourself, too.

[ViolinCyndee]

Wow, Cyndee. :O

No, you don't need that excitement at all. I know you're worried sick about Jeff, but please make sure to take care of yourself, too.

Thanks Scott... I really did almost lose it completely on Thurs. The only thing keeping me on track WAS taking care of him..

[ViolinCyndee]

Thanks for posting the pic, wil!! :)

[wilcox660]

Do you mean the one I posted?

[ViolinCyndee]

Do you mean the one I posted?


Yes, that is exactly what I meant! My mind is kinda shot right now.. Thanks for posting the pic.. :) (fixed my post!)

[ViolinCyndee]

UPDATE: we will be going home in a few hours. He is just finishing up an infusion of potassium, then we can finally go. At least we will have one day together this holiday weekend that we can actually enjoy before I have to work on Tuesday. I should just be happy he is still with us, and that he was not home alone when the seizure happened....

[mozo-pg]

My best wishes for you and Jeff. I think it's very healthy to post your struggles on PE. There is obviously a lot of people who care.

[ViolinCyndee]

My best wishes for you and Jeff. I think it's very healthy to post your struggles on PE. There is obviously a lot of people who care.

Thanks... I know that people do care here, and we appreciate all of the love and support during this very difficult time.. xoxo

[ViolinCyndee]

UPDATE: Jeff is in the hospital again. He was especially weak today, so I took him to Jefferson. Good thing, because his white cell count is extremely high and he is running a fever. They did some bloodwork, CT, and MRI to diagnose where there may be an infection. He's getting IV fluids, too, since he is dehydrated again. Should have more news tomorrow..

[VickiLynn]

Sending out strength for you both, Cyndee. I hope Jeff is feeling better now that he's getting the fluids that he needs.

[ViolinCyndee]

Sending out strength for you both, Cyndee. I hope Jeff is feeling better now that he's getting the fluids that he needs.

Thank you Vicki...He looks about the same, but at least he's eating right now..

We should have more info in a few hours...

[Scott Bails]

Thanks for keeping us updated, Cyndee.

[dropforge]

UPDATE: Jeff is in the hospital again. He was especially weak today, so I took him to Jefferson. Good thing, because his white cell count is extremely high and he is running a fever. They did some bloodwork, CT, and MRI to diagnose where there may be an infection. He's getting IV fluids, too, since he is dehydrated again. Should have more news tomorrow..

Is he still in the hospital? Are they going to let him go home today/tonight?

[ViolinCyndee]

Is he still in the hospital? Are they going to let him go home today/tonight?

He cannot go yet.. he is very weak, still..

UPDATE: Jeff's culture samples came back negative for infection, so the fever is likely due to the tumors on his liver. His white cell count is probably due to the Nulasta shot he gets after chemo to stimulate white cell production. He is a bit anemic now, so will be receiving a blood transfusion soon. Neurologist said that his seizure was likely due to malnutrition and nothing neurologically, but they want to make sure his brainwave activity is normal, so did the EEG today. We'll have the results of the EEG tomorrow..

[Scott Bails]

Some really dumb questions, please forgive me...



He cannot go yet.. he is very weak, still..

UPDATE: Jeff's culture samples came back negative for infection, so the fever is likely due to the tumors on his liver.

This sounds bad? Or would it have been a better scenario if it had been infection?


Neurologist said that his seizure was likely due to malnutrition and nothing neurologically

Obviously this is good news, but shouldn't his nutrition be taken care of by the hospital?


Not trying to get too into your business here, Cyndee. Please only respond if you have the time or inclination.

Wishing for good results from the EEG....

[ViolinCyndee]

Some really dumb questions, please forgive me...




This sounds bad? Or would it have been a better scenario if it had been infection?



Obviously this is good news, but shouldn't his nutrition be taken care of by the hospital?


Not trying to get too into your business here, Cyndee. Please only respond if you have the time or inclination.

Wishing for good results from the EEG....

Scott.. not dumb questions! It would prob be better if he had an infection, since they'd treat it with antibiotics. And... yes, the hospital is trying to take care of him, nutritionally, as I am. But, when he refuses to eat enough, or drink enough water, things are tough. He is on a supplements, has gotten infusions of potassium and magnesium, and they are trying to get him to eat and drink enough. Of course, the IV fluids are taking care of the liquids for now, but he will actually have to drink enough when we go home. Everyone's telling him this but he cannot seem to make it happen, so far.. :(

[ViolinCyndee]

I think the EEG will be fine.. They are just ruling everything else out as much as possible...

[Scott Bails]

Hmm...I see. Thanks for the response. The feeding thing sounds like it can be pretty rough.

Man, you guys really need a break. Hope you get one soon.

[ViolinCyndee]

Hmm...I see. Thanks for the response. The feeding thing sounds like it can be pretty rough.

Man, you guys really need a break. Hope you get one soon.

It's very rough and causing major problems, such as the seizure, not being able to get chemo, etc... :( He is at his record low weight and is extremely weak.. I hate to see him like this. :(

[VickiLynn]

Chemo can really put a damper on appetite. My mother was able to tolerate shakes when she didn't feel like eating, so we added protein powders, Greek yogurt, fruits. I'm sure the dietitian at the hospital has given you tons of "tips" for stimulating Jeff's appetite. I'm keeping you both in my thoughts and picturing a good report tomorrow.

[ViolinCyndee]

Chemo can really put a damper on appetite. My mother was able to tolerate shakes when she didn't feel like eating, so we added protein powders, Greek yogurt, fruits. I'm sure the dietitian at the hospital has given you tons of "tips" for stimulating Jeff's appetite. I'm keeping you both in my thoughts and picturing a good report tomorrow.

Yup, we have been doing smoothies all along. The dietitian is impressed with my knowledge of food, smoothies, etc.. But, the problem is not what I give him, it's what he actually gets IN there! He is having so much trouble even with smoothies...

[progeezer]

Stay strong, sweetie!

I was with Duncan last night and we talked about all the s**t you're BOTH going through right now and how we both have you in our thoughts, fervently hoping for the best possible scenario.

Duncan is doing some consulting here in Madison for a few more weeks, and last night the one local prog band had a gig.

[ViolinCyndee]

Thanks Geezer and everyone.. xoxo

[Polypet]

please let Jeff know we're pulling for him - chemo is brutal, and i know you guys have been truly in a battle thus far. i really do hope he can pull through and start getting his weight and strength back.

you are in our hearts and we wish you all the best with this. hugs and love to you both. hang in there, hon.

Kim

[ForeverAutumn]

Cyndee, I just wanted to pipe in and let you know that I'm thinking about you both and sending lots of love, hope, and positivity your way.

[laurainspace]

*hugs* here too (as well as on FB). thanks for keeping us posted, Cyndee, and were here for you and Jeff (in the larger metaphorical sense of "here").

[ViolinCyndee]

Thank you all from the bottom of my heart...

[ViolinCyndee]

UPDATE: Jeff had his oncology appointment today, and his doctor told us that his tumors are still growing, and his ulcer is getting larger too, from the tumors. She is going to switch chemo drugs, and start him on them ASAP. Even though the drugs he has been getting are the most aggressive combo, sometimes, switching to other drugs can make a difference for some patients. <crossing fingers> We really appreciate all of the love and support everyone has been showing us during this difficult time..

[Don Arnold]

Continued prayers for you and Jeff. And thanks for all the updates. Even though I've never met you two, it seems through PE and this thread you've become much more than just two other folks on the planet, as I visit this thread regularly to keep up with how you're doing. Hang in there, never give up....and play some prog.

[ViolinCyndee]

Continued prayers for you and Jeff. And thanks for all the updates. Even though I've never met you two, it seems through PE and this thread you've become much more than just two other folks on the planet, as I visit this thread regularly to keep up with how you're doing. Hang in there, never give up....and play some prog.

Thank you for taking an interest in us... We appreciate the support so much..

[Scott Bails]

Really appreciate the updates, Cyndee. No doubt you have other things on your mind.

[ViolinCyndee]

Really appreciate the updates, Cyndee. No doubt you have other things on your mind.

Thanks Scott, and yes I do. Things are harder every single day, as he loses independence and gets weaker. Crossing our fingers about the new chemo working for him..

Btw, posting updates is helpful to me--a way to vent, and also glad to get all the love and support everyone has been showing to us during this difficult time. Means SO much... xoxo

[progeezer]

Without being specific, I know from personal experience a lot of what you're feeling, Cyn. I'm glad that these updates are helping you cope.

It's not easy feeling angry and helpless at the same time.

We're all here, hon!

[Plasmatopia]

Glad the posts are helping you to vent, Cyndee. I may not say much, but I check here every day and (rather quietly) root for you both. All the best to you guys.

[Dan Roth]

I may not say much, but I check here every day and (rather quietly) root for you both. All the best to you guys.

Same here.

You guys are in my thoughts and prayers. Rooting for both of you.

[Jerjo]

Still sending the positive vibes...stay strong.

[ViolinCyndee]

Thanks everyone!!! xoxo

[Modry Effekt]

Sending positive vibes to Jeff and Cyndee.Sending lot of love :)

Jorge Ben & Lucinha Lins - Georgia e Jorge


http://youtu.be/CPpxVxp80hw

[ViolinCyndee]

Thanks everyone.. things are getting tougher..

[VickiLynn]

Thanks everyone.. things are getting tougher..
I'm sorry to hear that, Cyndee. Love, strength and peace to you both.

[Rune Blackwings]

Sorry for all the tough things you are going through.

[Duncan Glenday]

...things are getting tougher..

We're still pulling for you guys, Cyndee. Send jeff our best regards, and be sure he knows how many people are supporting him.

[progeezer]

It's hard I know, but stay as strong and positive as you can, Cyn. I'm not a Christian, but my ex-wife & kids are, and I mentioned your travails to them and how it bummed me out.

FWIW (might as well cover all the bases:)), they all prayed for Jeff in church Sunday and made a request that the whole church pray. Not my scene, but I felt I should tell you guys about that.

[ViolinCyndee]

Thanks everyone.. xoxo

Geezer... Jeff and I aren't into the whole praying thing either, but the thoughts are nice!

[mozo-pg]

Please don't forget how much everyone cares about Jeff's health and how we realize how tough this is for you and his loved ones.

[Garden Dreamer]

Hoping for a positive outcome for you and Jeff, Cyn.